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A conversation about life with Alpha-1 Antitrypsin Deficiency

A1R TIME is initiated by CSL Behring to spread awareness about the serious genetic condition Alpha-1 Antitrypsin Deficiency. The condition is mainly affecting the lungs, often giving rise to chronic obstructive pulmonary disease, with a major impact on human life. Under the name A1R TIME we will publish podcasts and videocasts were you´ll meet patients and experts sharing experiences and insights about the disease, about treatment options and current research. Our goal is to create a community for all affected by Alpha-1.

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The physically active non-smoker can also have an Alpha-1 Antitrypsin Deficiency

Episode 2 of 3 with Dr Møller. Even specialists overlook clear signs of Alpha-1 Antitrypsin Deficiency and neglect to take the important blood test that can lead to the diagnosis. This is what Doctor Helene Møller Frost talks about in this edition of A1R TIME

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Suffer from Alpha-1 or are you asymptomatic?

Episode 1 of 3 with Dr Møller. What is the difference between suffering from Alpha-1 Antitrypsin Deficiency and being an asymptomatic carrier of the disease? Doctor Helene Møller Frost explains.

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Early diagnosis offers better treatment options

Lise lived without a correct diagnosis for years and was past 40 before she was diagnosed with Alpha-1-Antitrypsin Deficiency. Today she has become too ill for medical treatment, but has fortunately benefited from a valve operation.

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The long road to diagnosis

Gunhil knew that something was not right. She was 18 years old and short of breath. When it was at its worst, her lung capacity was down to 20 percent.

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The complete fascination of a protein

Eeva Piitulainen has been fascinated by Alpha-1 Antitrypsin Deficiency and found it remarkable that no pulmonologist was conducting research on the subject.

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