The long road to diagnosis
Gunhil knew that something was not right. She was 18 years old and short of breath. The doctor said she had bronchitis, later she was told it was asthma. When it was at its worst, her lung capacity was down to 20 percent. Today Gunhil is 57 years old, has undergone a lung transplant and is feeling better than ever. In this episode of A1R TIME, she tells her story; why the diagnosis was delayed, what the doctors could have done differently and what her little brother thought her about Alpha-1. This episode is in Danish.
A1R TIME is initiated by CSL Behring. Our goal is to spread awareness about Alpha-1 Antitrypsin Deficiency and to create a community for all affected by the diagnosis.
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Episode 1 of 3 with Dr Møller. What is the difference between suffering from Alpha-1 Antitrypsin Deficiency and being an asymptomatic carrier of the disease? Doctor Helene Møller Frost explains.
The complete fascination of a protein
Eeva Piitulainen has been fascinated by Alpha-1 Antitrypsin Deficiency and found it remarkable that no pulmonologist was conducting research on the subject.