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A conversation about life with Alpha-1 Antitrypsin Deficiency
Suffer from Alpha-1 or are you asymptomatic?
Episode 1 of 3 with Dr Møller. What is the difference between suffering from Alpha-1 Antitrypsin Deficiency and being an asymptomatic carrier of the disease? Doctor Helene Møller Frost explains. Working at the Department of Pulmonary Medicine at Aalborg University Hospital she meets patients with Alpha-1 Antitrypsin Deficiency regularly.
In Denmark, 2500-3000 people suffer from Alpha-1 Antitrypsin Deficiency but there are still many undiagnosed cases, only 10 percent are diagnosed. The condition can easily be mistaken for other diseases and cannot be diagnosed by symptoms or by a medical examination alone; you need to get a blood test to know for sure. All of this and much more in this first A1R TIME videocasts with Doctor Helene Møller Frost. In the next two episodes, you get to meet her again as she explains a complicated patient case and family screening.
A1R TIME is initiated by CSL Behring. Our goal is to spread awareness about Alpha-1 Antitrypsin Deficiency and to create a community for all affected by the diagnosis.
Want to share your story? Send us an email: info@cslbehring.com
More episodes
When should you test for Alpha-1 Antitrypsin Deficiency?
Episode 3 of 3 with Dr Møller. Have you tested your COPD and asthma patients for Alpha-1 Antitrypsin Deficiency?
Many patients are diagnosed with asthma or COPD when some of them in reality suffer from Alpha-1 Antitrypsin Deficiency. This is why Helene Møller Frost encourages general practitioners to take a blood test for Alpha-1 Antitrypsin Deficiency on patients with asthma or COPD.
The physically active non-smoker can also have an Alpha-1 Antitrypsin Deficiency
Episode 2 of 3 with Dr Møller. Even specialists overlook clear signs of Alpha-1 Antitrypsin Deficiency and neglect to take the important blood test that can lead to the diagnosis. This is what Doctor Helene Møller Frost talks about in this edition of A1R TIME.